Showing posts with label Endometriosis. Show all posts
Showing posts with label Endometriosis. Show all posts

Wednesday, March 25, 2009

Surgery update!

Hey ladies just a quick update to let you know I survived! I have spent all day in bed, in & out of consciousness. I will probably be that way at least tomorrow too! Surgery went fine, no problems, he did find a some endometrial adhesion's on my bowel that he had to remove, which means the endometriosis has obviously spread to other organs. (I am not sure what all that means yet!) And also it was found that I have Adenomyosis Endometriosis, which from what I have figure out so far means that I have a very severe case of Endometriosis. Meaning my doctor might have not been able to get all of the cells during the ablation because of how deep it is in my uterus. It's basically just a wait & see, hoping this still helps! Thank you all so much for your prayers & support! I will try to update again tomorrow or Friday!


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Monday, March 2, 2009

Doctors Appt

Why is it things never work out the way you planned?
Yep you guessed it, I still have 2 cyst on my ovary. They are smaller but not by much, which my doctor said is a good thing because that tells us that it's not cancer! CANCER? Excuse me no one told me CANCER? Apparently if you have PCOS you are at a high risk for ovarian cancer! Geez! So my options...

*Lupron-A shot that basically puts your body into menopause to make you stop ovulation, which intern stops the build of endometriosis & from cyst forming! I did this 8 yrs ago, it was one of the first things I tried, & it didn't work for me. The cyst I had ended up doubling in size & I had to have the ovary removed because the blood supply was cut off to it due to the cyst wrapping around it. So I am thinking that's not the best option for me.

*Drain the cyst & possibly do a endometrial oblation along with tying my tubes. That is the more conservative surgical option because it means I keep the ovary. However the ablation will not affect having cyst again. So basically I could be right back in there in 2 months or so with more cyst.

*Total Hysterectomy-Which would then mean hormone replacement therapy along with who knows what other side effects. This is the option my doc is recommending, due to the fact that I spend a good majority of the month in bed popping pain pills.

Basically I am headed for a hysterectomy no matter what I do, it's either now or later! I just don't know what to do. The GD says it's totally my decision, my Mom doesn't want me to have the hysterectomy, my bff says get it over with because I am in so much pain. I just don't know what the right decision is. Trust me when I am in the throws of this, I say take it all, but is that the right choice. Is there a right choice? AHHHHHHHHHH! Why can't the answer just be written out in stars in the night sky or something?


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Monday, February 2, 2009

Bad day...very bad day

Can I just start by saying, I am so mad. Yes I said it, I am MAD. It has been a horrible day, horrible I tell you. Let me back up...Saturday night I started having really bad cramps with stabbing pain as well. Immediately I knew what it was, it was the same pain I had 8 yrs ago when I was first diagnosed with endometriosis & had cyst on my right ovary. That lead to multiple surgeries & eventually loosing that ovary. So you can imagine the fear that was ripping through me, along with the pain. It was some what better Sunday morning but by Sunday night I was hurting again. Now mind you I was on several Darvocet & I was still balled up in the fetal position. So first thing this morning I called my OBGYN (whom I love dearly & trust totally!) & they had me come in for an ultrasound...the verdict...
3 CYST on my left ovary & a lot of fluid around it meaning one had already ruptured.
And based on the amount of fluid it was a big one. Great just great. 3 CYST, 3!!!!!

So my options are to stay on the pill & check back next month to see if they are gone or what. The other option is surgery, I have had way to many surgeries in my lifetime I don't want to have another if I don't have too. So I choose the first option, knowing of course I might end up having to do surgery anyway. He also gave me Loratab (the good stuff) to help with the pain, because he said I will be in a lot of it, considering the cyst have to go somewhere!
Great just freakin great!

Okay I am going to stop complaining now & be thankful. I truly am thankful for my boys, for a husband that loves me in spite of all this crap, for the fact that yes this is painful but it's not cancer or something that could kill me. For the fact that my children are healthy & are not suffering from some terrible disease! And for all of these things & so much more I am thankful. But ladies, again I am asking for prayers. I fear it's going to be a rough few weeks & then I don't even know what's going to happen eventually. But I do know beyond a shadow of doubt that my God is control & He loves me!

Jer 29:11 "For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future."


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Tuesday, January 6, 2009

So what did you do yesterday?

I have no clue what happened! I posted a whole thing about yesterday & my doctors appt, then somehow I managed to delete it! I will try to rewrite what I said!

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Me? Let's see I was up by 7 & in the playroom/old nursery by 7:30 taking down the border in there! Had to leave by 9 for my 9:30 doctors appt (more on that below)! Met up with my bff at 10 to get her son, C, so I could watch him yesterday for her! Home by 11 after a quick trip to Home Depot for another gallon of paint! The kids had lunch & were down for naps by 11:45 & I had started painting by 12. Painting continued until 3:30 when I was finally done & exhausted! But it was a great productive day! Made even better by getting to go hang out with my girlfriends & watch "The Bachelor"(OMG!!! DeAnna comes back?!?!?! For those of you who have no idea what I am talking about then just ignore the last 2 lines!)

Anyway, on to more important details...the doctors appt. You know this whole time, while still sad, I have been at such peace about us deciding to be done. And I still am, but I go in there & I am immediately crying about it! I haven't cried in days about it, but as soon as I am in front of my wonderful doctor the tears start a flowing! It's really not that surprising because I am definitely a crier but I was surprised still! Anyway I digress, on to what he wants me to do now! So he put me on OrthoTricycleneLo & said he feels like when I am absolutely 100% sure that then we need to do a
Endometrial Ablation & a Tubal. I came home last night & started looking stuff up about it & I really know I shouldn't do that because it will just scare you to death but I just don't know what to do! I was wondering if anyone out there in my wonderful bloggy land of friends have had either of these & what your outcome was?

The other interesting thing I found out is I have now been officially diagnosed with
PCOS! I have always thought I might have this but it's weird to be officially dx with it! So now I am learning all about PCOS, you know on top of the fact that I already have endometriosis! From everything I am reading (again online which is probably bad) it's even more AMAZING that we have the 2 children we do! Endometriosis, only have one ovary due to Endometriosis, and now PCOS! Tell me theres not a God, seriously because I would love to tell you my story & prove you wrong! My God is the Ultimate Physician, the Creator of Life & He chose to bless me with the 2 miracle boys I have! I just can't tell you how much more blessed I feel! It's truly amazing what our God can do & I won't stop praising Him for it!

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